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NCT07818213
How Can the Experience of Hospital Outpatient Departments be Improved?
Conditions: Neurofibromatosis Type 1 (NF1), NF2-related Schwannomatosis
Sex: All
Ages: 16 Years – 99 Years
Healthy volunteers: Yes
Enrollment: 30
Sponsor: King's College London
Location: Guy's and St Thomas' NHS Foundation Trust London London
Summary
This project aims to improve outpatient departments by working with patients and staff to make these spaces more inclusive for people with sensory challenges (it focuses on people with nerve tumour conditions as they are more likely to have sensory challenges). The project uses a well-established method called experience-based co-design (EBCD), which supports patients and staff to work together. It will run over 4 years.
Eligibility Criteria
Inclusion Criteria:
* Patients aged 16 or over who attend outpatient appointments coordinated by the Guy's and St Thomas' NHS Foundation Trust NF team
* Patients who identify as having sensory challenges
* Carers and relatives accompanying patients
* Staff providing care for people with nerve tumour predisposition conditions at Guy's and St Thomas' NHS Foundation Trust in any job role or banding.
Exclusion Criteria:
* Individuals who are unable to provide explicit informed consent.
* Paediatric patients under 16 years of age.
* Temporary staff who have spent less than one shift in their role.
Source: ClinicalTrials.gov (NCT07818213). StuddyBuddy aggregates publicly available trial information.