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Recruiting
NCT05915208
Histiocytic Disorder Follow-up Study
Conditions: Histiocytosis, Langerhans Cell Histiocytosis, Erdheim-Chester Disease, Rosai Dorfman Disease, Xanthogranuloma, Malignant Histiocytoses
Sex: All
Ages: 0 Years – 89 Years
Healthy volunteers: No
Enrollment: 6000
Sponsor: University of Alabama at Birmingham
Location: University of Alabama at Birmingham Birmingham Alabama
Summary
The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders
Eligibility Criteria
Inclusion Criteria:
* diagnosis of histiocytic disorder at any age
1. Langerhans cell histiocytosis,
2. Erdheim-Chester disease,
3. Rosai-Dorfman disease,
4. Xanthogranuloma,
5. Mixed histiocytosis
6. Malignant histiocytosis (Histiocytic sarcoma, langerhans cell sarcoma, interdigitating cell sarcoma)
7. Hemophagocytic lymphohistiocytosis
Exclusion Criteria:
* None
Source: ClinicalTrials.gov (NCT05915208). StuddyBuddy aggregates publicly available trial information.
