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Recruiting NCT05748314

Marfan Syndrome and Quality of Life of Pediatric Patients

Conditions: Rare Diseases, Pediatric Disorder

Sex: All

Ages: N/A – 18 Years

Enrollment: 80

Sponsor: IRCCS Policlinico S. Donato

Location: Italy

Summary

The goal of this observational study is to learn about the impact of Marfan syndrome (MFS) in paediatric affected subjects. the main questions it aims to answer are:The assessment of quality of life in MFS Italian patients;The impact of phenotypic manifestations on self-image and self-management skills;Stratify patients according to the need of psychological support. Participants will take part in the study by completing four self-report questionnaires.

Eligibility Criteria

Inclusion Criteria:Signed informed consent;MFS diagnosis according to Revised Ghent criteria (2010);Exclusion Criteria:Known cognitive deficits

Interested in this study? View the official listing for contact and enrollment details.

View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05748314). StuddyBuddy aggregates publicly available trial information.