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NCT05741541
How Would the Creation of a Follow-up Methodology in Consultation Improve the Care of the Epileptic Patient?
Conditions: Epilepsy
Sex: All
Ages: 18 Years – N/A
Enrollment: 15
Sponsor: Hopital Nord Franche-Comte
Location: France
Summary
The goal of this observationnal study is to identify the informative and educational needs of epilepsy patients to avoid interrupting the therapeutic pathway.The main question it aims to answer are :Identify the patient's expectations of a nurse specializing in epilepsy in the areas of information, predictive elements of good care and adaptation to their state of healthIdentify under-addressed or misunderstood themesIdentify patient resources and interventions already in placeEnsuring better continuity of careImprove the knowledge of patients and their relatives about the management of their pathologyAfter a consultation with the neurologist (as part of their usual follow-up), the participants will be referred to a nurse for a semi-directive, individual interview, lasting 30 minutes and composed of open and closed questions.
The announcement of the diagnosis, the quality of life or the factors contributing to the difficulties and their repercussions on a daily basis will be discussed during the interview.
Eligibility Criteria
Inclusion Criteria:Adult epileptic patients, over 18 years oldPatients with focal or generalized epilepsyPatients affiliated or entitled to a social security schemePatients who have received informed information about the study and who have co- signed, with the investigator, a non-objection to participation in the studyPatients whose diagnosis has been made for at least 6 monthsExclusion Criteria:Patients with intellectual disabilitiesMinorsUntreated patients, in remissionPatients without affiliation to a social security schemePatients under guardianship or curatorship
Source: ClinicalTrials.gov (NCT05741541). StuddyBuddy aggregates publicly available trial information.