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Recruiting
NCT05712577
Psychological Support in Adult Patients With Marfan Syndrome
Conditions: Rare Diseases, Marfan Syndrome, Psychology, Social
Sex: All
Ages: 18 Years – N/A
Enrollment: 125
Sponsor: IRCCS Policlinico S. Donato
Location: Italy
Summary
The goal of this observational study is to identify key factors leading to psychotherapy or psychological support in adult subjects with Marfan syndrome (MSF).
the main questions it aims to answer are:Understand and define which internal variables of the individual drive this request for psychological support;To learn about verify the impact that the clinical manifestations of MSF have on psychosocial aspects, self-esteem, subjective perception of the disease and coping mechanisms.
Eligibility Criteria
Inclusion Criteria:Subjects affected by Marfan syndrome;Subjects currently in follow-up at Cardiovascular Genetic Centre, IRCCS Policlinico San Donato;Signed informed consent.Exclusion Criteria:Subjects with cognitive deficits
Source: ClinicalTrials.gov (NCT05712577). StuddyBuddy aggregates publicly available trial information.