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Recruiting NCT05712577

Psychological Support in Adult Patients With Marfan Syndrome

Conditions: Rare Diseases, Marfan Syndrome, Psychology, Social

Sex: All
Ages: 18 Years – N/A
Enrollment: 125
Sponsor: IRCCS Policlinico S. Donato

Location: Italy

Summary

The goal of this observational study is to identify key factors leading to psychotherapy or psychological support in adult subjects with Marfan syndrome (MSF). the main questions it aims to answer are:Understand and define which internal variables of the individual drive this request for psychological support;To learn about verify the impact that the clinical manifestations of MSF have on psychosocial aspects, self-esteem, subjective perception of the disease and coping mechanisms.

Eligibility Criteria

Inclusion Criteria:Subjects affected by Marfan syndrome;Subjects currently in follow-up at Cardiovascular Genetic Centre, IRCCS Policlinico San Donato;Signed informed consent.Exclusion Criteria:Subjects with cognitive deficits

Interested in this study? View the official listing for contact and enrollment details.

View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05712577). StuddyBuddy aggregates publicly available trial information.