Duchenne Muscular Dystrophy Video Assessment Registry

ARISE is a prospective and longitudinal clinical study of individuals with Duchenne Muscular Dystrophy (DMD) aimed at creating a database of functional motor abilities in this population to support validation efforts of the Duchenne Video Assessment (DVA).

Inclusion Criteria:Participant is 2 years or older at time of consentParticipant is willing and able to participate and provide informed consent; if between the ages of 7 to the day before the age of majority in the participant's location is willing and able to provide assent and has a parent or legal guardian who is willing and able to provide consentParticipant and recording partner must speak, read, and understand English proficientlyProvide confirmation and documentation of the participant's clinical medical diagnosis of Duchenne muscular dystrophy (i.e., genetic report, clinic note)Exclusion Criteria:The participant is unable to perform the remote video capture tasks specified by the Duchenne Video Assessment, North Star Ambulatory Assessment or Performance of Upper Limb 2.0, as specified by the branching questionnaire