Pediatric and Adult Registry for Patients With ARThrogryposis

Sex: All

Ages: N/A – 90 Years

Healthy volunteers: 1

Enrollment: 230

Sponsor: University Hospital, Grenoble

Summary

The aim of the study is Epidemiological Evaluation of a single-centre national cohort of patients with Arthrogryposis multiplex congenita (AMC)

Eligibility Criteria

Inclusion Criteria:Patients diagnosed with arthrogryposis multiplex congenita prenatally or postnatally seen at least once at the reference center from January 2008 to July 2023.pediatric and adult individuals.Addressed to the reference centre of the University Hospital Grenoble Alpes.living in France.Exclusion Criteria:Individuals who did not consent to use their data (or the data of their children).Individuals with less than two affected joint levels.Individuals under guardianship or deprived of liberty.Inability to collect comprehensive medical information (individuals recently arrived in France)

Interested in this study? View the official listing for contact and enrollment details.

View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05673265). StuddyBuddy aggregates publicly available trial information.