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Recruiting NCT05671107

Development and Validation of an Online Neurobehavioral Evaluation Tool for PTEN Patients

Conditions: PTEN Hamartoma Tumor Syndrome

Sex: All

Ages: 3 Years – 45 Years

Enrollment: 300

Sponsor: John Carroll University

Location: United States

Summary

The purpose of this study is to develop a survey completed by parents, caregivers, or other informants that evaluates several important domains of functioning relevant to individuals with neurodevelopmental disorders, including autism spectrum disorder and people with genetic syndromes. Participation in this research will include assisting the research team in the development of the survey measures.

Eligibility Criteria

Inclusion Criteria:Has a PTEN Hamartoma Tumor Syndrome diagnosis with or without a neurodevelopment disorderAccess to a tablet (10+ inch screen), laptop, or desktop computerAccess to reliable internetAble to attend to short videos (30 plus seconds)Able to hear audio from a computer deviceAble to see without corrective lenses

Interested in this study? View the official listing for contact and enrollment details.

View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05671107). StuddyBuddy aggregates publicly available trial information.