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Active Not Recruiting NCT05655741

Modified Delphi for Genomic Bereavement Care

Conditions: Fetal Anomaly, Bereavement, Genetic Disease

Sex: All
Ages: 18 Years – 70 Years
Enrollment: 53
Sponsor: The Leeds Teaching Hospitals NHS Trust

Location: United Kingdom

Summary

It is estimated that 1 in 4 pregnancies end in loss, be these early miscarriages, ectopic pregnancies, or later intrauterine losses for any reason. Genomics is a major part of pregnancy loss, and clinicians want to offer the best and most appropriate test available to women and their families, whilst ensuring that there is equity in the access to this testing, so that no family goes through a loss without the right support and information. Whilst there is limited information to inform professionals as to how to incorporate genomics into bereavement care there is a need to identify current expert consensus as to how this should be performed, in order to make recommendations for best practice.

Eligibility Criteria

Inclusion Criteria:Participants must belong to one of the relevant stakeholder groups; Maternal and fetal medicine consultants or obstetricians with a special interest in fetal medicine, Clinical geneticists with an interest in prenatal genomics, Perinatal pathologists Clinical scientists with an interest in genomics, Bereavement midwives.Exclusion Criteria:Nil if inclusion criteria are met

Interested in this study? View the official listing for contact and enrollment details.

View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05655741). StuddyBuddy aggregates publicly available trial information.