← Back to all trials
Active Not Recruiting
NCT05655741
Modified Delphi for Genomic Bereavement Care
Conditions: Fetal Anomaly, Bereavement, Genetic Disease
Sex: All
Ages: 18 Years – 70 Years
Enrollment: 53
Sponsor: The Leeds Teaching Hospitals NHS Trust
Location: United Kingdom
Summary
It is estimated that 1 in 4 pregnancies end in loss, be these early miscarriages, ectopic pregnancies, or later intrauterine losses for any reason.
Genomics is a major part of pregnancy loss, and clinicians want to offer the best and most appropriate test available to women and their families, whilst ensuring that there is equity in the access to this testing, so that no family goes through a loss without the right support and information.
Whilst there is limited information to inform professionals as to how to incorporate genomics into bereavement care there is a need to identify current expert consensus as to how this should be performed, in order to make recommendations for best practice.
Eligibility Criteria
Inclusion Criteria:Participants must belong to one of the relevant stakeholder groups; Maternal and fetal medicine consultants or obstetricians with a special interest in fetal medicine, Clinical geneticists with an interest in prenatal genomics, Perinatal pathologists Clinical scientists with an interest in genomics, Bereavement midwives.Exclusion Criteria:Nil if inclusion criteria are met
Source: ClinicalTrials.gov (NCT05655741). StuddyBuddy aggregates publicly available trial information.