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NCT05651555
Evaluation of the EHPAD Caregiver/Pact & Pad Psycho-educational Program for Caregivers With an Institutionalized Parent
Conditions: Caregivers
Sex: All
Ages: 18 Years – N/A
Phase: NA
Enrollment: 70
Sponsor: Assistance Publique - Hôpitaux de Paris
Location: France
Summary
Moving into an institution is a new stage in the life of the patient but also of the caregiver.
The caregiver is overwhelmed by various feelings such as loss of control, powerlessness, guilt, sadness, the feeling of loneliness at home but also relief.
This experience can be characterized by great anxiety and the feeling of being misunderstood by the family and professional environment.This emotional state is not without consequences for the caregiver/resident and caregiver/care team relationship.Several factors have been identified that may be at the origin of these states.A new training, information and support program has been created to present these different factors to caregivers and to allow them to address them with professionals in a group setting.
Eligibility Criteria
Inclusion Criteria:Family caregivers defined according to the European charter for family caregivers COFACE: "the non-professional person who comes to the aid mainly, in part or totally, to a person dependent on his or her entourage, for activities of daily living.
This regular help can be provided on a permanent basis or not and can take several forms, in particular: nursing, care, support for education and social life, administrative procedures, coordination, permanent vigilance, psychological support, communication, domestic activities. .
Currently, these caregivers have an elderly relative living in an institution or in the process of institutionalizationHave been a caregiver for at least six monthsHave a parent in an EHPAD for less than 25 weeksThe loved one is not at the end of life when the caregiver starts the programParticipate in at least five workshops out of the seven offered as part of the program.Be of legal age (at least 18 years old)Presence of depression or anxiety according to HADBe motivated to follow the programSignature of consent.Be affiliated with a social security schemeExclusion Criteria:Caregiver with a loved one living at home without institutionalization plansProfessional caregivers, former caregiversAbsence of depression and/or anxietyDeceased relativeHave untreated diagnosed psychiatric disordersTo be suffering from proven cognitive disordersAlready benefit from another caregiver assistance program.Patient under AMEVulnerable people
Source: ClinicalTrials.gov (NCT05651555). StuddyBuddy aggregates publicly available trial information.