Satisfaction of Patients With Amyotrophic Lateral Sclerosis Regarding Home Assisted Teleconsultation

Satisfaction of patients with amyotrophic lateral sclerosis under non-invasive ventilation regarding home assisted teleconsultation

Inclusion Criteria:Patient with a diagnosis of ALS coming for a follow-up consultation with their pneumologistDaily NIV compliance of more than 4 hours in the month prior to inclusionLiving at homePatient with a natural caregiverPatient equipped with computer equipment adapted for teleconsultation (tablet, computer, telephone... with an internet connection)Patient able to read and understand the procedure, and able to express consent for the study protocolPatient, or his or her caregiver, able to sign the consent to participate by himself or herselfExclusion Criteria:Patient not available or wishing to change region within 3 months of inclusionPatient currently participating or having participated in the month prior to inclusion in another clinical interventional research study that may have an impact on the study, this impact is left to the discretion of the investigatorPersons referred to in articles L1121-5 to L1121-8 of the French Public Health Code (corresponding to all protected persons)Pregnant women (for women of childbearing age and in the absence of reliable contraception, the β-HCG (human chorionic gonadotropin) assay will be performed), parturient women, breastfeeding women,persons deprived of their liberty by judicial or administrative decision,persons under legal protection