Quality of Life in Middle-aged and Older Patients With Congenital Ichthyosis

The goal of this observational study is to learn about the quality of life in patients with congenital ichthyosis.The main question it aims to answer are:• What is the impact of ichthyosis on the biological-psychological-social quality of life in adult and elderly patients with inherited ichthyosis ?Participants will take part in individual interviews in which the investigators will explore if and how ichthyosis impacts their quality of life. Examples of such questions are whether participants experience pain, experience struggles in their personal or professional lives, with sports activities or if participants experience a financial burden.

Inclusion Criteria:30 years of age and olderClinical or genetic confirmed variant of congenital ichthyosisExclusion Criteria:<30 years of ageichthyosis vulgarisanother primary chronic skin condition besides ichthyosispatients who are not able to read/speak Dutch