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Recruiting NCT05603936

Adaption and Testing of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire for Parents With Children From 0-4

Conditions: Achondroplasia, Small for Gestational Age, Growth Hormone Deficiency

Sex: All

Ages: 18 Years – N/A

Enrollment: 168

Sponsor: Universitätsklinikum Hamburg-Eppendorf

Location: Germany

Summary

The aim of the study is the adaption, implementation and validation of the instrument for the investigation of the short stature specific quality of life (QoLISSY) for children (age 0-4 years) with achondroplasia (ACH), Small for Gestational Age (SGA) and Growth Hormone Deficiency (GHD) from a parental perspective.

Eligibility Criteria

Inclusion Criteria:Parents of children aged 0-4 with the diagnosis Achondroplaisa, Short for Gestational Age or Growth Hormone DefiencyExclusion Criteria:Other diagnosis than Achondroplaisa, Short for Gestational Age or Growth Hormone DefiencyChildren older than 4 years of age

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View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT05603936). StuddyBuddy aggregates publicly available trial information.