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Recruiting
NCT04883905
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Conditions: Acute Hepatic Porphyria
Sex: All
Ages: 12 Years – N/A
Healthy volunteers: No
Enrollment: 150
Sponsor: Alnylam Pharmaceuticals
Location: Clinical Trial Site Birmingham Alabama
Summary
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.
Eligibility Criteria
Inclusion Criteria:
* Documented diagnosis of AHP, per physician's determination
Exclusion Criteria:
* Currently enrolled in a clinical trial for any investigational agent
Source: ClinicalTrials.gov (NCT04883905). StuddyBuddy aggregates publicly available trial information.
