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Active Not Recruiting
NCT04516499
Neurofilament Surveillance Project (NSP)
Conditions: Frontotemporal Dementia, Frontotemporal Lobar Degeneration, FTD-GRN, FTD, FTLD
Sex: All
Ages: 18 Years – 85 Years
Healthy volunteers: Yes
Enrollment: 342
Sponsor: The Bluefield Project to Cure Frontotemporal Dementia
Location: University of California, San Francisco San Francisco California
Summary
This is a biomarker study designed to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations. The NSP is an ancillary study to the ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration" (ALLFTD) study, NCT04363684. More information can be found at https://www.allftd.org/.
Eligibility Criteria
Inclusion Criteria:
1. Male or female
2. Ages 18-85
3. Provision of signed and dated informed consent form
4. Stated willingness to comply with all study procedures and availability for the duration of the study
5. Is enrolled in the longitudinal arm of ALLFTD
6. Is a member of a family with a known mutation in C9orf72, GRN or MAPT
Exclusion Criteria:
1. Any permanent contra-indication to repeated blood draws, such as poor venous access.
2. Any conditions or circumstances which, in the opinion of the investigator, would not allow participation in the study.
Source: ClinicalTrials.gov (NCT04516499). StuddyBuddy aggregates publicly available trial information.
