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Recruiting
NCT03489278
Clinical Procedures to Support Research in ALS
Conditions: Amyotrophic Lateral Sclerosis, ALS-Frontotemporal Dementia, Primary Lateral Sclerosis, Progressive Muscular Atrophy
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: No
Enrollment: 1200
Sponsor: University of Miami
Location: University of California, Irvine Irvine California
Summary
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Eligibility Criteria
Inclusion Criteria:
* Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
* Receiving care at a clinical center that uses Epic as its EHR.
* Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Exclusion Criteria:
* Inability to understand English and/or Spanish
Source: ClinicalTrials.gov (NCT03489278). StuddyBuddy aggregates publicly available trial information.
